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Web links |
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| Denise Robertson | ||
| Bubble Foundation UK President - Author, Agony Aunt & Broadcaster | ||
| What are stemcells | ||
| The Genetic Science Learning Center | ||
| IPOPI - International Patient Organisation for Primary Immunodeficiencies | ||
| A global organisation working to improve the quality of life for people with primary immunodeficiencies. | ||
| Max Appeal! | ||
| Supporting families affected by DiGeorge Syndrome, VCFS, 22q11.2 deletion | ||
| Genetic Interest Group | ||
| A national alliance of organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders. | ||
| Information about Severe Combined Immune Deficiencies (SCID) | ||
| Primary Immunodeficiency Association (UK) | ||
| An organisation which supports people who live with Primary Immunodeficiencies (P.I.Ds). It works by liaising with clinicians and immunologists, funding relevant research and campaigning for the rights of its members. | ||
| Primary Immunodeficiency Association of Ireland | ||
| We are an Irish group set up to support people & families who are affected by an immune deficiency disorder and also to promote awareness both with the medical profession and in the wider community | ||
| jmfworld.com | ||
| The Foundation is dedicated to early and precise diagnosis, meaningful treatments, and ultimately cures of Primary Immunodeficiencies. | ||
| cafamily.org.uk | ||
| Contact A Family- for families with disabled children Only UK charity providing support and advice to parents whatever the medical condition of their child. Helping families who care for a disabled child or a child with specific health conditions to face challenges. | ||
