A letter from Khadiajh’s Mother

Khadijah was only 7 months when she was diagnosed Omenn like syndrome. She was admitted into Newcastle General Hospital in the bone marrow unit. She was placed in a special sterile unit. We were not allowed to kiss or have facial contact with her, so she didn’t catch any germs from us, as this would have been life threatening for her.

This period in our life was very hard as we were living in Bradford, and had to leave our 10 year old son with his grandparents, to go and stay in Newcastle for Khadijah’s treatment. The Bubble Foundation supported us whilst in Newcastle by giving us accommodation to stay in, which we are very grateful for.

Khadijah was just approaching her first birthday when she had her Bone Marrow Transplant. Her cousin was a perfect match! She got very ill a few weeks after having her Bone Marrow. She had Post BMT pneumonitis and had to be admitted into ICU. We were told by doctors that she might not make it. That night was the most difficult time of our lives. But Khadijah was a fighter! She spent 5 days in the ICU and quickly recovered.

We stayed for a few weeks in Newcastle in the after care home; again this was funded by the Bubble Foundation. We came back to Bradford after 8 months. Khadijah went to the Bradford Royal Hospital for IVIG treatment and was gradually taken of the IVIG and other medication by June 2004.

Khadijah is 8 years old now and is not on any medication! She still has her yearly checks with the consultants in Newcastle. She is healthy bubbly child and is enjoying her life to it fullest! This is thanks to the staff in the BMT unit in Newcastle, the Consultants, and the Bubble Foundation, who do a brilliant job, and have helped us through this very difficult Journey!